The websites listed below are excellent ways to learn about lymphedema and offer resources to contact for additional information about treatment.
Additional Information
Lymph Notes
Lymphatic Education & Research Network
Lymphatic Research & Education Institute
The Lymphie Life
Stanford Health Care
Books
I have included several books related to lymphedema and lymphatics which have been recommended to me by other patients.
Clinical Trials
There are several ways to search for clinical trials.
Lymphedema Trials | Clinical Trials.gov
Lymphedema Trials | Good Clinical Practice Network
Patient Registry
International Lymphatic Disease and Lymphedema Patient Registry and Biorepository | Stanford Health Care
Printables
10 Things I’d Like My Family and Friends to Know About Lymphedema | Lymphatic Education and Research Network
10 Things Individuals With Lymphedema Need To Know About Fibrosis | Lymphatic Education and Research Network
Physicians
Ways to Search for Physicians
Specialties which usually are good places to look are: cardiologists, vascular/vein doctors, dermatologists and lymphedema clinics.
The American Board Of Venous And Lymphatic Medicine offers a physician search locator for Certified Vein Specialists.
LINK: How To Find A Good Doctor
Research
Diagnosis and staging of lymphedema | A. Greene and J. Goss (2018)
Diagnosis, treatment and quality of life in patients with cancer-related lymphedema | I. Kalemikerakis, A. Evaggelakou, A. Kavga1, M. Vastardi, T. Konstantinidis and O. Govina (2021)
Do no harm: Lymphedema risk reduction behaviors | J. Nudelman (2016)
The effect of the combined use of complex decongestive therapy with electrotherapy modalities for the treatment of breast cancer-related lymphedema: A randomized clinical trial | M. Hemmati, Z. Rojhani-Shirazi, Z. Zakeri, M. Akrami and N. Dehno (2022)
Effects of extracorporeal shockwave therapy on improvements in lymphedema, quality of life, and fibrous tissue in breast cancer-related lymphedema | K. Lee, S. Kim, J. Lee and Y. Kim (2020)
The impact of cancer-related lower extremity lymphedema on patient quality of life: A qualitative meta-synthesis | C. Bowman, M. Baydoun and L. Carlson (2023)
The impacts of lymph on the adipogenesis of adipose-derived stem cells | H. Hsiao, J. Liu, M. Pappalardo and M. Cheng (2023)
Lymphatic changes in respiratory diseases: More than just remodeling of the lung? | B. Stump, Y. Cui, P. Kidambi, A. Lamattina and S. El-Chemaly (2017)
Mesenteric lymph nodes at the center of immune anatomy | A. Macpherson and K. Smith (2006)
Structural and functional features of central nervous system lymphatics | A. Louveau, I. Smirnov, T. Keyes, J. Eccles, S. Rouhani, J. Peske, … and J. Kipnis (2016)
The unresolved pathophysiology of lymphedema | S. Azhar, H. Lim, B. Tan and V. Angeli (2020)
Therapists
About Certified Lymphedema Therapists
There is no single set of criteria that define and certify a “certified lymphedema therapist.” The National Lymphedema Network (NLN) and the Lymphology Association Of North America (LANA) are two organizations which have recommended minimum standards for competency, including 128-135 hours of training in decongestive therapy and hands-on experience with lymphedema patients. A lymphedema therapist specializes in the diagnosis, care, and treatment of lymphedema — he or she may be a nurse practitioner, doctor, physical therapist, occupational therapist, etc. Practitioners who specialize in lymphedema therapy are adept at manual decongestive therapy — the form of specialized massage used to stimulate lymph drainage in affected areas of the body — and applying compression wraps. There are several schools mentioned below for this type of training.
LANA also recommends courses in relevant lymphatic network-focused anatomy and physiology, as well as hands-on instruction. There is a voluntary exam that aspiring a lymphedema therapist may take upon completion of this course work. The exam is the Clinical Lymphedema Therapist-LANA (CLT-LANA). Upon successful completion of the exam, a healthcare provider may proclaim their CLT-LANA certification.
What is a lymphedema therapist and how can one help you? (n.d.). Lymphedema Products. https://www.lymphedemaproducts.com/blog/what-is-a-lymphedema-therapist-and-how-can-one-help-you/
Ways to Search for Therapists
Ways to Search for Therapists
The Lymphology Association Of North America (LANA) certifies therapists and offers a therapist locator.
There are several different schools and methods of instruction in lymphatic drainage. Use the links below to locate a therapist near you.
Academy Of Lymphatic Studies Therapists (ACOLS)
Casley-Smith Therapists
Chikly Therapists
Klose Therapists
Norton Therapists
Vodder Therapists
You can also use the resource map at the American Lymphedema Framework Project to locate therapists in your area.
The Ehlers-Danlos Society offers the Ehlers Danlos Healthcare Professionals Directory for physicians and therapists.
Schools for Therapists
Academy of Lymphatic Studies
Brennan School of Innovative Lymphatic Studies
Casley-Smith International
Chikly Institute
International Lymphedema & Wound Training Institute
Klose Training
LymphEd
Monarch Consulting and Education
Norton School
Pacific Therapy Education
Plastic Surgery Recovery Massage
Vodder School
Learn More
Benefits Of Lymphatic Drainage Massage | Hypervibe
Detox Your Lymphatic System With These 20 Tricks | Medical News
Diagnosis Of Lymphedema | Jobst LymphCare
Differences Between Lipedema And Lymphedema | Lymphedema Blog
Do Vibration Plates Help With Swelling? | Hypervibe
Identifying Fibrosis In Every Stage Of Lymphedema | Lymphatic Network
Lipedema Versus Lymphedema: Differences And Key Takeaways | Hypervibe
Living With Lymphedema In Legs | Jean LaMantia RD
Lymphatic Drainage Massage | Real Bodywork
Lymphatic System Anatomy | Kenhub
Lymphatic Yoga | Edely Wallace
Lymphedema | Susan Komen
Lymphedema Continuing Education Activity | National Institutes of Health
Lymphedema And Blood Pressure | Jean LaMantia RD
Lymphedema And Lipedema – Indications Contraindications And Risk Factors PDF | 2018 Michigan Occupational Therapy Association Annual Conference
Lymphorrhea | Jean LaMantia RD
Medicines And Selenium Supplements For Lymphedema | Jean LaMantia RD
Symptom Management Guidelines: Lymphedema PDF | British Columbia Provincial Health Services Authority
What You Need To Know About Pressotherapy | Healthline