Mast Cell Activation Syndrome (MCAS) is a condition in which the patient experiences repeated episodes of the symptoms of anaphylaxis – allergic symptoms such as hives, swelling, low blood pressure, difficulty breathing and severe diarrhea. High levels of mast cell mediators are released during those episodes. Learn more about MCAS at the Mast Cell Disease Society.
Additional Resources
The websites listed below are excellent ways to learn about mast cell disorders and offer resources to contact for additional information.
Mast Attack.org
Mastocytosis Society Canada
Hereditary Alpha Tryptasemia FAQ | National Institute Of Allergy And Infectious Disease
UK Masto.org
Vogmask
Practitioners in Arizona
Finding a practitioner who is knowledgeable about MCAS is difficult. This resource has been compiled with input from patients in numerous support groups and is updated as I come across mention of MCAS-aware practitioners.
Do you have a practitioner or other information to add to this resource? Please email me, and I’ll happily get that info included on this page.
This listing is meant to provide a first step in locating a practitioner but is not a recommendation. It is recommended to contact any practitioner you are considering to ensure that they are still in practice and can help you with MCAS.
LINK: How To Find A Good Doctor
Allergy and Immunology
Matthew Baylon, PA-C Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Kevin Boesel MD Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Ryan Casper MD Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Eiza Ching MD Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Nicole Englert PA-C Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Levente Erdos MD Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Todd Hrabak DO Allergy and Immunology | Glendale, Peoria, Surprise
Connie Hsu MD Allergy and Immunology | Glendale, Litchfield Park, Phoenix, Tempe
Ronald Jorgensen MD Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
John Lewis MD Allergy and Immunology, Internal Medicine | Phoenix
Kevin Madayag, PA-C Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Jacob Maddux MD Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Michael Manning MD Allergy and Immunology | Gilbert, Scottsdale
Joseph Mittel MD Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
William Morgan MD Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Alexander Nicholson MD Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Heather O’Connell PA-C Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Gilbert Ortega MD Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Christine Pratt PA-C Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Matthew Rank MD Allergy and Immunology, Internal Medicine, Pediatrics | Phoenix
Mark Rose MD Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Sam Shimamoto MD Allergy and Immunology | Gilbert
Puneet Shroff MD Allergy and Immunology | Tucson
Julie Wendt MD Allergy and Immunology | Scottsdale
Katie Werner PA-C Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, Surprise
Riley Willman, PA-C Allergy and Immunology | Avondale, Chandler, Mesa, Peoria, Phoenix, Scottsdale, SurpriseCardiology
Sarika Desai DO Cardiology | Phoenix
Chris Geohas MD Cardiology | Fountain Hills, Glendale, Peoria, Phoenix, Scottsdale
Lee Goldberg MD Cardiology | Tucson
Chris Lichtenwalter MD Structural Heart | Chandler, Mesa, Queen Creek
Nader Makki MD Cardiology | Casa Grande, Douglas, Nogales, Tucson
Tabitha Moe MD Cardiology | Mesa, Phoenix, Scottsdale
Vijay Swarup MD Cardiology | Gilbert, Phoenix, Prescott, Sun City, Yuma
Sundarone Thihalolipavan MD Cardiology | Gilbert, Phoenix, Prescott, Sun City, YumaComplementary and Alternative Medicine
Jesika DiCampli MD Naturopathic Medicine | Phoenix
MaryK Geyer ND Conventional and Alternative Medicine | ScottsdaleCounseling
Mary Beth Ackerley MD Psychiatry | Tucson
Patricia Falcon PsyD (520) 303-4209 Psychology | Tucson
Gayle Masterson MD Psychiatry | Tucson
Barbara Zebb PhD (520) 730-9484 Psychology | Green ValleyDental Medicine
Nicholas Mooberry DDS Dentistry | Tucson
Jeremy Tanner DMD Dentistry | TucsonDermatology
Aaron Mangold MD Dermatology | Phoenix
Margaret Kessler MD Dermatology | Phoenix
Travis Lam DO Dermatology | Phoenix
Gary McCracken MD Dermatology | Casa Grande, Chandler, Fountain Hills, Gilbert, Glendale, North Scottsdale, Paradise Valley, Tatum, WickenburgEndocrinology
Anna Boron MD Endocrinology | Phoenix NOT ACCEPTING NEW PATIENTS AT THIS TIME
James Deer MD Endocrinology | Phoenix NOT ACCEPTING NEW PATIENTS AT THIS TIME
Atul Lalani MD Neuroendocrinologist | Scottsdale
Monica Rodriguez MD Endocrinology | Phoenix CLOSED
Kevin Yuen MD Neuroendocrinologist | PhoenixGastroenterology
Alan Bracher MD Gastroenterology | Chandler, Gilbert
Jessica Laurino PA-C Gastroenterology | Chandler, Gilbert
Anupama Mathew MD Gastroenterology | Peoria
Michael Mills MD Gastroenterology | Phoenix
Darrell Reed MD Gastroenterology | Mesa
Aravind Sugumar MD Gastroenterology | Glendale, Peoria, Sun City West
Eugene Tharalson MD Gastroenterology | PhoenixHematology-Oncology
Carrie Mattie NP Hematology-Oncology | Chandler
Internal Medicine
Carlos Borras MD Internal Medicine | Tucson
Theresa Dowell DNP PT Specialty Clinic | FlagstaffNeurology
Brent Goodman MD Neurology | Phoenix
Jill Rau MD Neurology | Scottsdale AHCCCSOphthalmology and Optometry
Aleta Gong OD Optometry | Phoenix
POTS Wellness Clinic
POTS Wellness Clinic (602) 258-3354 Nicole Murray NP Honor Health | Scottsdale
Rheumatology
Savitha Kalya MD Rheumatology | Phoenix
Printables
Emergency Alert Card PDF | Mast Cell Disease Society
Patient Resource Guide PDF | Mast Cell Disease Society
Ways To Advocate For A Child In The Emergency Room PDF | Mast Cell Disease Society
Research
Association of mast-cell-related conditions with hypermobile syndromes: A review of the literature | A. Monaco, D. Choi, S. Uzun, A. Maitland and B. Riley (2022)
Expanding spectrum of mast cell activation disorders: Monoclonal and idiopathic mast cell activation syndromes | M. Picard, P. Giavina-Bianchi, V. Mezzano and M. Castells (2013)
Hyperadrenergic postural tachycardia syndrome in mast cell activation disorders | C. Shibao, C. Arzubiaga, L. Roberts II, S. Raj, B. Black, P. Harris and I. Biaggioni (2005)
Mast cell activation disorder and postural orthostatic tachycardia syndrome: A clinical association | R. Kohno, D. Cannom, B. Olshansky, S. Xi, D. Krishnappa, W. Adkisson … and D. Benditt (2021)
Mast cell disorders in Ehlers–Danlos syndrome | S. Seneviratne, A. Maitland and L. Afrin (2017)
Postural orthostatic tachycardia syndrome and the potential role of mast cell activation | T. Doherty and A. White (2018)
Proliferative action of mast-cell tryptase is mediated by PAR2, COX2, prostaglandins, and PPARγ: Possible relevance to human fibrotic disorders | M. Frungieri, S. Weidinger, V. Meineke, F. Kohn and A. Mayerhofer (2002)
Quercetin is more effective than cromolyn in blocking human mast cell cytokine release and inhibits contact dermatitis and photosensitivity in humans | Z. Weng, B. Zhang, S. Asadi, N. Sismanopoulos, A. Butcher, X. Fu … and T. Theoharides (2012)
https://pubmed.ncbi.nlm.nih.gov/32553831/
Hereditary Alpha-Tryptasemia: UK Prevalence and Variability in Disease Expression
Rebecca C Robey 1, Amy Wilcock 2, Hope Bonin 3, Glenda Beaman 1, Bethan Myers 4, Clive Grattan 5, Tracy A Briggs 6, Peter D Arkwright
Selective response to omalizumab in a patient with concomitant ncMCAS and POTS: What does it teach us about the underlying disease? | M. Kacar, S. Denman and S. Savic (2018)
Successful treatment of postural orthostatic tachycardia and mast cell activation syndromes using naltrexone, immunoglobulin and antibiotic treatment | L. Weinstock, J. Brook, T. Myers and B. Goodman (2018)
Utility of hydroxyurea in mast cell activation syndrome | L. Afrin (2013)
Supplements
Best Quercetin Supplements for Salicylate Intolerance
NAC
Stinging nettles leaves
Bromelain
tudca bile salts
If you have MTHFR you need to get B2 before any others, esp. B6. People that have had B6 toxicity issues aren’t able to process the B6 due to low B2.
Famotidine acts on H2 receptors which are vascular and GI.
Lactobacillus Rhamnosus (LGG) Probiotic
Support Groups
Nationwide
Histamine Intolerance | Facebook
Arizona
AZ Mast Cell Support | Facebook
Tucson Tissue Connection | Facebook
Symptoms Tracker
Learn More
15 Natural Anti-Histamines And Mast Cell Stabilizers | Functional Diagnostic Healing